Tips for Managing PNH
OneSource can make that easy for you. If your insurance allows it, OneSource will help arrange your infusions while you are away from home. Simply call your Alexion Nurse Case Manager — at least 2 weeks before you leave — for help with finding an infusion site while you are travelling.
To get the most out of Soliris, you need to keep taking it. While travel can be a break from the everyday, you should always stick with your infusion schedule, whether you’re on the road or not. That’s because even though you can’t see it or feel it, hemolysis, the root cause of PNH, is always happening in your body. Left untreated, PNH can lead to serious health problems. So let OneSource help you make sure your infusion schedule continues uninterrupted. You should also speak with your doctor about how to best manage your PNH while you are away from home.
Keep safety close at hand
Remember to always carry important medical information while you travel, including your Patient Safety Information Card and the telephone numbers of your doctors and Alexion Nurse Case Manager.
There are many ways to tap into support. At OneSource, we're here to help make things as easy as possible.
PNH is a disease of constant hemolysis, or destruction of red blood cells. Hemolysis is the root cause of the signs, symptoms, and serious health problems of PNH. Even though you can’t see it, hemolysis is always happening in your body. That’s why treatment for it needs to be ongoing, as well. Soliris is the only FDA-approved treatment for PNH to reduce hemolysis. During treatment in clinical studies, Soliris reduced hemolysis in all PNH patients.
If your PNH treatment is Soliris, it is recommended that you receive it every 2 weeks. This recommended dosing schedule is based on the results of clinical trials with Soliris. However, your doctor will determine what is the most appropriate dosing schedule for you. But whatever your schedule, the important thing is to stick with it.
Staying on track with Soliris helps to keep your symptoms under control. Click here for tools that will help you get the most out of your therapy.
Remember, OneSource is here to help. You can reach us at 1.888.SOLIRIS (1.888.765.4747).
OneSource is here to help answer your questions about your coverage. We can review your options with you to help ensure your Soliris coverage and therapy continue uninterrupted. And that’s important, because PNH is an ongoing disease that needs ongoing treatment.
If your insurance plan has a lifetime maximum that’s close to being exhausted, or if you don’t have insurance, we can assist you by researching alternative funding options. Likewise, if your insurance coverage is changing, if you are switching plans, or if you need to add or remove family members, we can help find the best option for you.
Alexion Nurse Case Managers have years of experience in healthcare and dealing with insurance issues. Whatever your question when it comes to managing your disease, they can work with you and your doctor to help find answers. Get in touch by calling 1.888.SOLIRIS (1.888.765.4747).
Frequently asked questions about OneSource
A: OneSource is a program offered by Alexion that provides education, assistance with access, and treatment support for people living with PNH and their caregivers. Whether you are learning more about your disease, exploring treatment options, getting ready to start treatment with Soliris, or are already on Soliris, OneSource is here to help.
OneSource is staffed by Alexion Nurse Case Managers who are registered nurses with healthcare and insurance expertise. While your doctor is your first source of information about treating PNH, Alexion Nurse Case Managers are available every step of the way to answer questions about PNH and Soliris and provide personalized support for you and your healthcare team.
A: Yes. OneSource Alexion Nurse Case Managers work with people with PNH every day. Feel free to ask them questions about PNH and Soliris. Case Managers are available every step of the way to help answer your questions and provide personalized treatment support for you and your healthcare team. They can even send you useful tools and educational resources.
A: OneSource can help. PNH is rare, so you may run into insurance issues you don't see with more common diseases. Alexion Nurse Case Managers are registered nurses with healthcare and insurance expertise. They can help navigate through insurance issues, funding options, and other needs that are important to your treatment plan.
A: Alexion Nurse Case Managers are available for support. They can also help put you in touch with another person living with PNH.
Count on your Alexion Nurse Case Manager for answers to these questions and more.